GRIN2B Foundation is a parent-led organization dedicated to furthering research on the GRIN2B gene and providing support and education to the small, but growing community of individuals and families impacted by a GRIN2B diagnosis. Our objectives are to… FOSTER communication, offer encouragement and provide resources to families. PARTNER with researchers through fundraising and grants to develop potential treatments and gain a better understanding of a GRIN2B diagnosis. FACILITATE an international patient registry program. RAISE the profile of this extremely rare diagnosis through the creation of a public awareness campaign.
| Website | http://www.grin2b.com |
| Employees | 6 (3 on RocketReach) |
| Founded | 2017 |
| Phone | +1 407-825-1234 |
| Technologies |
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| Industry | Non-profit Organizations |
| Keywords | Rare Disease Research, Genetic Disorder Support, Family Support Network, Genetic Testing Information, Patient Advocacy Group, Medical Research Foundation, Disease Awareness Campaign, Epilepsy Research, Neurodevelopmental Disorders, Nonprofit Organization, Developmental Disorders |
| Competitors | Brain & Behavior Research Foundation (BBRF), National Fragile X Foundation, The National Institutes of Health, Global Genes, The Cure Alliance, National Organization for Rare Disorders, The Jackson Laboratory, Patient-Centered Outcomes Research Institute (PCORI), SFARI +27 more (view full list) |
Looking for a particular GRIN2B Foundation employee's phone or email?
Liz Marfia-Ash is the President of GRIN2B Foundation.
3 people are employed at GRIN2B Foundation.