Empowering the Next Generation Rare Disease Advocate. Global Genes and RARE-X officially merged into one organization December 2022 under the name Global Genes. Both organizations have been working toward the goal of empowering the next generation advocate both through their individual initiatives and their strategic partnership announced in 2021. RARE-X was born out of Global Genes after discussions with advocacy leaders, board members, partners, patients, and care partners, addressing a significant gap in access to tools, technology, and infrastructure. Hope. It’s in our genes.™
| Website | http://www.globalgenes.org |
| Revenue | $8.9 million |
| Employees | 44 (21 on RocketReach) |
| Founded | 2009 |
| Address | 28 Argonaut Ste 150, Aliso Viejo, California 92656, US |
| Phone | +1 949-248-7273 |
| Technologies |
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| Industry | Non-profit Organizations, Business Services General, Rare Disease Awareness, Business Services, Public and Physician Education, Supporting Research Initiatives, Patient Advocacy, Rare Disease, Undiagnosed Patient Program, Education |
| Web Rank | 809974 |
| Web Visits | 68770 |
| Keywords | Global Genes Rare Project, Rare Hand Defsiseases, The Forever Fix Gene Therapy And The Boy Who Saved It Questions, Global Genes, Gene Therapy 101 |
| Competitors | The National Institutes of Health, EveryLife Foundation for Rare Diseases, National Organization for Rare Disorders, Patient Advocate Foundation, Genetic Alliance, Cure Rare Disease, Rare Disease Foundation, Rare Disease UK, World Duchenne Organization +33 more (view full list) |
| SIC | SIC Code 839 Companies, SIC Code 83 Companies |
| NAICS | NAICS Code 813212 Companies, NAICS Code 813 Companies, NAICS Code 81321 Companies, NAICS Code 81 Companies, NAICS Code 8132 Companies |
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Global Genes Questions
The Global Genes annual revenue was $8.9 million in 2026.
Charlene Rigby is the CEO of Global Genes.
21 people are employed at Global Genes.
Global Genes is based in Aliso Viejo, California.
The NAICS codes for Global Genes are [813212, 813, 81321, 81, 8132].
The SIC codes for Global Genes are [839, 83].
Top Global Genes Employees
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Charlene Rigby
Chief Executive Officer at Global Genes
San Francisco, CA, US45+ -
Nicole Boice
Chief Mission Officer at Global Genes
Sandy, UT, US25+ -
Kathy O'Connor
Director, Corporate Engagement at Global Genes
Aliso Viejo, CA, US1 -
23 -
35+
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Cynthia Kuan
Director, Program Operations at Global Genes
San Francisco, CA, US2 -
25+
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Kristin Soto
Associate Director of Development at Global Genes
Dana Point, CA, US12 -
Michele Whiteside
Director, Programs and Events at Global Genes
Richmond, VA, US25
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