The National Organization for Rare Disorders, a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 330 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services. NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products. NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). All NORD programs are focused on one ultimate goal -- to improve the lives of individuals and families affected by rare diseases. NORD is the official sponsor of Rare Disease Day in the US, an observance day held on the last day of February each year worldwide. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. To learn more, visit rarediseaseday.us. To learn more please visit the NORD website at www.rarediseases.org. You can also follow NORD on Twitter at @RareDiseases.
View Top Employees from National Organization for Rare DisordersWebsite | http://www.rarediseases.org |
Employees | 166 (129 on RocketReach) |
Founded | 1983 |
Address | 55 Kenosia Avenue, Danbury, Connecticut 06810, US |
Phone | (617) 249-7300 |
Fax | (203) 263-9938 |
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Industry | Non-profit Organizations, Charitable Organizations & Foundations, Rare Diseases, Organizations, Patient Assistance, Patient Support, Rare Disease Information, Advocacy, Information For Medical Professionals, Research, Online Communities, Orphan Diseases |
Web Rank | 64554 |
Web Visits | 1 Million |
Keywords | Rare Disease |
Competitors | American Liver Foundation, American Parkinson Disease Association, Crohn's & Colitis Foundation, National Psoriasis Foundation, United Mitochondrial Disease Foundation |
SIC | SIC Code 839 Companies, SIC Code 83 Companies |
NAICS | NAICS Code 81 Companies, NAICS Code 8132 Companies, NAICS Code 813212 Companies, NAICS Code 81321 Companies, NAICS Code 813 Companies |
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Lisa Phelps is the Vice President of Community Engagement of National Organization for Rare Disorders.
129 people are employed at National Organization for Rare Disorders.
National Organization for Rare Disorders is based in Danbury, Connecticut.
The NAICS codes for National Organization for Rare Disorders are [81, 8132, 813212, 81321, 813].
The SIC codes for National Organization for Rare Disorders are [839, 83].