Hyper IgM Foundation Information

Hyper IgM Foundation, a non-profit organization, was founded in 2015 by dedicated parents, healthcare professionals, and friends. Hyper IgM Syndrome is a rare disease affecting only 1 in 1,000,000 individuals, which is caused by a genetic mutation that severely compromises the immune system. Those living with Hyper IgM face a significantly shortened life span, multiple hospitalizations, and a high risk of secondary cancers. The only known cure is a bone marrow transplant. Due to its rarity, treatment and diagnosis of this disease is ad hoc, at best. Our mission is to improve the treatment, quality of life and long term outlook for children and adults living with Hyper IgM through research, support, education, and advocacy to families and patients.