RareShare Information

RareShare is a unique social hub serving hundreds of rare disease communities since 2008, allowing direct exchange of information among patients, families, research organizations and healthcare professionals. RareShare is built on a premise that sharing information is good, especially when it comes to information about rare diseases. The more you share the more you have an opportunity to help others whose lives have been touched by rare disease. By joining our community of support and sharing information about your experience, you will help others, including researchers, better understand your disease. Please keep in mind that the content and extent to which you share is ultimately your choice and responsibility. Our goals: - Create a sense of community for those affected by rare disorders - Communicate with others that are affected by the same condition - Contribute condition-related information, experiences, support, and resources