Rare Patient Voice connects patients and family caregivers with all types of research opportunities. We meet patients and caregivers at in-person events such as conferences, meetings, and walks. We also invite patients and caregivers to join our community by working with thousands of patient advocacy and support groups through our referral program. When you need to include the patient's voice in your research, they are ready to respond in sufficient numbers to help guide your marketing decisions. Our goal is to connect clients undertaking research studies with patients and family caregivers who are interested in sharing their opinions and insights about their medical conditions. We know that the time and input of patients and family caregivers is valuable. To date we have paid patients over $15 million dollars for participating in research since 2013.
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Rare Patient Voice Questions
The Rare Patient Voice annual revenue was $5 million in 2026.
Pam Cusick is the Senior Vice President of Rare Patient Voice.
36 people are employed at Rare Patient Voice.
Rare Patient Voice is based in Towson, Maryland.
The NAICS codes for Rare Patient Voice are [54, 541910, 54191, 541, 5419].
The SIC codes for Rare Patient Voice are [87, 873].
Top Rare Patient Voice Employees
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Pam Cusick
Senior Vice President at Rare Patient Voice
Annapolis, MD, US13 -
24
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Amb. Charrier
Partner at Rare Patient Voice
New York, United States -
24
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Kirk Munsch
Patient Advocacy Manager at Rare Patient Voice
Colorado Springs, CO, US22 -
Jennifer Messier
Director of Patient Advocacy at Rare Patient Voice
Lakeland, FL, US11 -
12
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Chris Cooper
Project Manager at Rare Patient Voice
Orlando, FL, US23
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