OUR MISSION KrabbeConnect's mission is to be the source of comprehensive information and access to resources for patients with Krabbe disease. The foundation will drive state of the art research by bridging the gap between science and patient knowledge. OUR VISION A day in which each patient receives early diagnosis, state of the art care, and lives a life free of disease. OUR MULTICENTER APPROACH Krabbe Connect is committed to pioneering a patient-centered care model and strengthening groundbreaking research by engaging the patients and caregivers with the Krabbe research community, to ensure the needs of Krabbe patients are being voiced. This multi-center collaborative cause will bring improved science, institute data sharing, establish standards of care for all courses of treatment, provide educational videos and continuing education courses, develop an industry-standard patient registry, and be a resource for clinical trial opportunities.
| Website | https://krabbeconnect.org/ |
| Employees | 6 (3 on RocketReach) |
| Founded | 2018 |
| Address | 13130 Aulden Ave, Rosemount, Minnesota 55068, US |
| Phone | +1 800-800-5509 |
| Technologies |
JavaScript
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HTML
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PHP
+27 more
(view full list)
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| Industry | Non-profit Organizations |
| Keywords | Disease Information, Rare Disease Support, Patient Community, Patient Education, Medical Information, Patient Advocacy, Disease Awareness, Medical Research, Health Resources, Healthcare Access, Genetic Disorders, Philanthropy, Scientific Collaboration, Neurological Conditions, Medical Research Funding, Nonprofit Organization, Lysosomal Storage Disorders, Clinical Trials, Global Health Initiatives |
| Competitors | The National Institutes of Health, EveryLife Foundation for Rare Diseases, National Organization for Rare Disorders, Patient Advocate Foundation, HealthWell Foundation, Global Genes, Genetic Alliance, Cure Rare Disease, KIF1A.ORG, Rare Disease UK +16 more (view full list) |
Looking for a particular KrabbeConnect employee's phone or email?
KrabbeConnect Questions
Stacy Pike-Langenfeld is the Co-Founder and President of KrabbeConnect.
3 people are employed at KrabbeConnect.
KrabbeConnect is based in Rosemount, Minnesota.
Top KrabbeConnect Employees
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Stacy Pike-Langenfeld
Co-Founder and President at KrabbeConnect
Rosemount, MN, US25+ -
Michelle Salvo
Vice President at KrabbeConnect
Philadelphia, PA, US11 -
Kasey Feldt
CRM Consultant at KrabbeConnect
Franklin, VA, US23
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