CheckRare Information

We give voice to the experts, stories, and perspectives shaping the world of rare disease. CheckRare is a media and education company built around rare disease and the specialized healthcare communities it touches. We bring together the people, stories, expertise, and ideas that can help move rare disease forward. Through video, podcasts, editorial content, and education, we make trusted information more accessible and give the rare disease community a bigger voice. We launched CheckRare as a website focused entirely on rare diseases at a time when reliable information was often difficult to find, fragmented across the internet, and hard for patients and healthcare professionals to navigate. We quickly learned that information alone wasn’t enough. People wanted to hear from the people who knew rare disease best. So we began bringing leading physicians, researchers and other experts into the conversation: capturing their knowledge, perspectives and experiences through video and making them accessible to a much broader audience. That simple idea grew. Over the years, CheckRare has built the largest library of rare disease video content, with more than 3 million video views, thousands of expert interviews and stories, and an expanding collection of podcasts, editorial content, and accredited education. Along the way, we built relationships with experts across the rare disease community and a growing audience of healthcare professionals and others seeking trusted information. What began as a website became a platform for sharing knowledge, amplifying expert voices, and connecting people across a complex and often overlooked part of healthcare. Today, CheckRare is a rare disease media and education company. We continue to build on that original idea by bringing together the people, stories, expertise, and ideas that can deepen understanding, improve care and make a difference for people affected by complex and often overlooked diseases.