Familial chylomicronemia syndrome (FCS) is a rare and potentially life-threatening genetic lipid disorder. The FCS Foundation is a nonprofit organization created by a group of FCS patients and their caregivers. It is dedicated to providing information and support to people affected by FCS and to identifying new resources to support research to find new treatments and potentially a cure. The Foundation is registered in California and provides information and support services through an online portal at www.livingwithfcs.org. It will also develop a range of educational and support programs and services for patients. Additionally, The FCS Foundation will take an active role in building broader awareness of FCS among clinicians and other care providers who support FCS families.
| Website | http://www.livingwithfcs.org |
| Employees | 5 (0 on RocketReach) |
| Founded | 2016 |
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| Industry | Wellness and Fitness Services |
| Keywords | Rare Genetic Disorders, Inherited Metabolic Disorders, Genetic Disease Support, Rare Disease Foundation, Patient Advocacy Group, Genetic Disease Research, Nonprofit Health Organization, Rare Disease Research, Medical Research Funding |
| Competitors | Pancreatic Cancer Action Network, American Liver Foundation, Global Genes, Friedreich's Ataxia Research Alliance (FARA), The Ehlers-Danlos Society, Foundation for Angelman Syndrome Therapeutics, FOUNDATION OF THE NATIONAL LIPID ASSOCIATION INC, American Autoimmune Related Diseases Association (AARDA), HEPATITIS FOUNDATION INTERNATIONAL INC +14 more (view full list) |
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