MitoCanada Competitors

The United Mitochondrial Disease Foundation powers the research, education, & support that is advancing treatments for patients and families affected by mitochondrial disorders.

MitoAction is a nonprofit organization founded by patients, parents, and Boston hospital healthcare leaders who had a vision of improving quality of life for children and adults with mitochondrial disease. The organization began in 2005 as an idea and has evolved from a small New England support group to a dynamic, active service organization helping thousands of patients and families. Despite the growth of the organization, the mission remains the same. MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease. To do this, MitoAction’s goals include: *To improve quality of life for adults and children affected by mitochondrial disease. *To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases. *To provide specific and practical materials that help patients to manage their symptoms *To aggregate and connect the international mitochondrial disease community *To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders. *To create tools which empower patients and caregivers to be advocates for themselves or their children. *To create unique experiential opportunities for adults and children affected by mitochondrial disease. We strive to offer comprehensive, up-to-date, expert resources, information, and support at no cost to any patient, family, clinician, educator, or member of the community. We continue to seek multiple ways to offer information such that the resources are accessible and user-friendly for people of all abilities. We foster relationships with the scientific, academic, research and business community in order to create sustainable support for the mission of MitoAction.

The Mito Foundation is the only organisation dedicated to supporting people affected by mitochondrial disease (mito) in Australia. We fund essential research into the prevention, diagnosis, treatment and cures of mitochondrial disorders, and increase awareness and education about this devastating disease. Mito is a debilitating genetic disorder that robs the body’s cells of energy, causing multiple organ dysfunction or failure and potentially death. One Australian baby born each week will develop a severe or life-threatening form of mito. That’s over 50 Australian children each year. Mito is terminal; there are no cures and few effective treatments. We are determined to change this. The Mito Foundation owns and operates The Bloody Long Walk national series, a 35km walking challenge along beautiful scenic routes across Australia. All moneys raised by participants help the Mito Foundation fund research and support for families affected by mito. The Bloody Long Walk offers an opportunity for individuals and businesses to make a meaningful difference to those impacted by the disease while raising awareness in local communities.