Lara Bloom Email & Phone Number
President and CEO @ The Ehlers-Danlos Society
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Lara Bloom Location
- United Kingdom
Lara Bloom Work
- 2015 -now President and CEO @
- 2020 -now Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration @
- 2025 -now Chair of the Board of Directors @
- 2023 -now Member Board of Trustees @
- 2025 -now Patient Group Engagement Committee Member @
- 2024 -now Strategic Advisory Board Member @
- 2023 -now Fellow @
- 2024 -now Member of RareCare Research Advisory Group @
- 2019 -now Patient Expert @
- 2017 -now International Advocacy Committee member @
- 2024 -2024 Co-investigator @
- 2022 -2023 Expert @ Stakeholder Network for Rare Diseases as part of the EU Health Policy
- 2019 -2023 Global Strategic Advisor @
- 2019 -2023 Expert @ Rare 2030 Panel of Experts
- 2021 -2023 Patient Expert in Think Tank Council @
- 2022 -2022 Task Force Member @ IRDiRC Telehealth Task Force
- 2021 -2022 Expert @
- 2017 -2022 Co-Investigator @
- 2019 -2020 Patient Expert @
- 2018 -2020 Expert @
- 2014 -2019 Patient Expert on the Rare Disease UK Patient Empowerment Group @
- 2013 -2015 Member of the Clinical Referencing group (CRG) in Specialised Rheumatology @
- 2010 -2015 Chief Operations Officer @
- 2012 -2012 Internship @
- 2007 -2010 Photographer @
- 2004 -2007 Key Account Manager @
- 2003 -2004 Specialist Sales Executive @ CCS International
Lara Bloom Education
- EUPATI European Patients Academy
Expert Training Course for Patients/Patient Representatives on Medicines Research & Development (Medicine)
2014-2015 - St Albans School of Philosophy
Introduction to Philosophy (Philosophy)
2013-2015 - Chartered Management Institute
CMI Modular Level 3 Certificate in First Line Management
2013-2014 - Birkbeck College, University of London
BA Hons Global Politics and International Relations (International Relations and Affairs)
2009-2013 - City Lit
Current Affairs Summer Course
2008-2008 - London Academy of Media, Film and TV
Diploma in Digital photography and re-touch master class
2008-2008 - City Lit and The Photographers Gallery
History of Photography Summer Course
2008-2008 - West Herts University
HND in Performance, Entertainment and Media (Arts, Entertainment, and Media Management)
1999-2001 - Watford Girls Grammar School
8 GCSE’s, St Johns Ambulance award & RSA in Information Technology (Merit) (GCSEs)
1991-2001
Lara Bloom Skills
- Patient Advocacy
- Board Level
- Patient Engagement
- Fundraising
- Non-profits
- Raiser's Edge
- Microsoft Excel
- Photoshop
- Microsoft Office
- Internet
- PowerPoint
- Public Speaking
- Social Media
- Nonprofits
- Marketing
- Management
- Leadership
- Event Management
- Sales
- Editing
- Strategic Planning
- Nonprofit Organizations
- Research
- Patient Expert
- Patient Advocate
- Research and Development (R&D)
- Motivational Speaking
Lara Bloom Summary
- Lara Bloom, based in United Kingdom, is currently a President and CEO at The Ehlers-Danlos Society. Lara Bloom brings experience from previous roles at Penn State College of Medicine, International Alliance of Patients' Organizations (IAPO), Genetic Alliance UK and Beacon for Rare Diseases. Lara Bloom holds a 2014 - 2015 Expert Training Course for Patients/Patient Representatives on Medicines Research & Development in Medicine @ EUPATI European Patients Academy. With a robust skill set that includes Patient Advocacy, Board Level, Patient Engagement, Fundraising, Non-profits and more. Lara Bloom has 6 emails and 1 mobile phone numbers on RocketReach.
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Top The Ehlers-Danlos Society Employees
Rachel Boon
Creative and Digital Communications Director
United Kingdom
Jessica Adelman
Social Media and Communications Manager
Baltimore, MD, US
Faye Moran
Event Manager
Redcar, GB
Sherri Marshall
Affiliate
Melbourne, VIC, AU
Sally Pezaro
Invited Chair: Pelvic Group
Olney, GB
Bianca Comfort
Co-Lead - Australian EDS and HSD Network of Excellence
Melbourne, VIC, AU
Jacqui Main
Co-Lead of the Australian EDS and HSD Network of Excellence
Cheltenham, VIC, AU
Lara Bloom
President and CEO
United Kingdom
Sarah Hamilton
Senior Global Alliance Coordinator
Steventon, GB
Leslie Russek
Educational Program Coordinator
Potsdam, NY, US
Sinead Waugh
Chief Operations Officer
London, England, GB
Danielle Hohlier
Director of Development
Corpus Christi, TX, US
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