Familial Dysautonomia Foundation Information

Our mission is to raise funds and operate programs to pursue the best possible medical treatment, scientific research, public education and social services for the benefit of those affected with or at risk for familial dysautonomia. FD is a genetic disorder affecting the autonomic and sensory nervous systems. It is found almost exclusively in people with Ashkenazi Jewish heritage. FD is an ultra-rare disease--fewer than 320 people are currently living with the disorder worldwide. --Dysautonomia Center at NYU Langone-- In the 1970s the Foundation was instrumental in establishing the Dysautonomia Center at NYU Langone, now the world’s premier site offering medical treatment for and clinical research on FD.