EB Research Partnership Information

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening genetic skin disorders that affect children from birth. We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. EB Research Partnership utilizes an innovative business model of venture philanthropy, leveraging concepts from principal investing and applying them towards achieving philanthropic goals. When we make a grant to a research project, we retain the added upside of generating a recurring donation stream if the therapy or product is commercially successful. We then use this revenue to fund additional EB research. Join us and learn more at: www.ebresearch.org