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OVERVIEW • The Jackson Laboratory is an independent, 501(c)3 nonprofit biomedical research institution founded in 1929 in Bar Harbor, Maine. • Our mission is to discover precise genomic solutions for disease and empower the global biomedical community in the shared quest to improve human health. • We are a global team of nearly 3,000 people at 11 locations in Maine, Connecticut, California, New York, and Japan and in remote locations around the world. • With a 2023 operating budget of $628M, JAX has substantial impact on our local communities. RESEARCH • With more than 60 faculty members, our diverse and multidisciplinary research programs include the National Cancer Institute-designated JAX Cancer Center, as well as coordinated research centers focused on addiction, aging, Alzheimer’s and dementias, genomics and computational biology, precision genetics and rare disease. • JAX has had a National Cancer Institute-designated Cancer Center since 1983, and is one of only seven institutes in the United States that has received this designation for its contributions to basic cancer research. • Our researchers have made significant contributions to medical progress, including bone marrow and organ transplants, stem cell therapies and in vitro fertilization. EDUCATION • We offer comprehensive educational programs for scientists throughout their careers, from high school students and teachers, to researchers at all experience levels, and for clinical providers interested in incorporating genetics and genomics into their practices. RESOURCES • Over 2,400 organizations in 68 countries rely on over 13,000 strains of genetically-specialized JAX® Mice and research services in a wide range of therapeutic areas. • Our Mouse Genome Informatics database is the world’s source for information on mouse genetics and biology.

The EveryLife Foundation for Rare Diseases is powered by the rare disease community to improve health outcomes by driving change through evidence-based policy, leading science-driven policy and regulatory research, activating the community to advocate for their rights and needs, and strengthening the rare disease community.

The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 350+ patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services. NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products. NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). All NORD programs are focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases. NORD is the official U.S. sponsor of Rare Disease Day, an international observance day held on the last day of February each year. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. To learn more, visit rarediseases.org/rare-disease-day. To learn more, please visit the NORD website at www.rarediseases.org. You can also follow NORD on X at @RareDiseases.