Baby's First Test Information

Baby's First Test houses the nation's newborn screening clearinghouse. The clearinghouse provides current educational and family support and services information, materials, and resources about newborn screening at the local, state, and national levels and serves as the Clearinghouse for newborn screening information. The clearinghouse is supported and funded as a result of the Newborn Screening Saves Lives Act passed in 2008. Continued support for the clearinghouse is possible under the Newborn Screening Saves Lives Reauthorization Act passed in 2014. This resource is dedicated to educating parents, family members, health professionals, industry representatives, and other members of the public about the newborn screening system. This site also provides many ways for people to connect and share their viewpoints and questions about the newborn screening system. By establishing a collection of educational information in a single place, BabysFirstTest.org is a one-stop shop that: Increases awareness, knowledge, and understanding of newborn screening for expectant and new parents, health professionals, industry representatives, and the public; Connects state and regional public health groups; Facilitates data and resource sharing; and Responds to emerging technologies and corresponding public health challenges. On BabysFirstTest.org you can find: Basic facts about newborn screening and what to expect from the newborn screening process; State-specific newborn screening program information for parents and health professionals, including conditions on state panels, state program contacts, and support resources; Condition-specific information, including causes, treatment, and family experiences; Social media features, such as micro-blogging through and videos; and An interactive blog that provides an open space for users to learn from one another and explore opportunities in education and policy. How is Baby's First Test Run? Baby's First Test is funded through a cooperative agreement from the Genetic Services Branch ...