Sands, the stillbirth and neonatal death charity, was founded in 1978 by a small group of bereaved parents, and parents and families remain at the core of everything we do.
Sands operates throughout the UK and its purpose is:
- To support anyone affected by the death of a baby
- Work in partnership with healthcare professionals to ensure that bereaved parents and families receive the best possible care
- To promote improvements in practice and fund research to help reduce the number of babies dying
We depend on the extraordinary energies of our supporters to raise the vital funds that we need to deliver the wide range of services that we offer.
The Lullaby Trust is a charity that exists to keep babies safe and keep grieving families supported. We give families a safer start to life, and create a supportive space for anyone whose baby or infant has died suddenly or unexpectedly. We do this by:
● Empowering parents, carers and professionals with trusted advice on baby safety including safer sleep and infection prevention.
● Funding research into sudden and unexpected death of babies and young children, to save lives.
● Offering anyone affected by the sudden or unexpected death of a baby or young child a supportive space to grieve, with bereavement support.
Nine babies die suddenly and unexpectedly each week in England and Wales. We won’t stop until that number is zero. Our mission is to stop babies dying unexpectedly from sudden infant death syndrome (SIDS), accident or illness.
Each year, we train thousands of health professionals to support parents in sleeping their baby safely. We support around 1,000 families with our bereavement support. We reach millions of families with our baby safety advice, and answer thousands of safer sleep questions from parents and carers. We campaign tirelessly to save lives.
1 in every 100 babies born in the UK has a serious heart condition. That's around one baby born every two hours fighting congenital heart disease (CHD). Tiny Tickers is the only UK charity dedicated to the early detection and care of those babies.
We know that spotting a heart defect as early as medically possible improves a baby's chances of survival and long-term quality of life. Sadly, 1,000 heart babies leave hospitals every year with no-one knowing they have a life-threatening heart condition, putting them in grave danger of going into heart failure. Some of those babies won't make it back to hospital in time to receive the treatment that could save them. Tiny Tickers is changing that.
We train sonographers to have the skills and confidence to detect heart defects at pregnancy scans. We know it works - the antenatal detection rate of heart defects has more than doubled from 23% to 53.5% since we started our work (NICOR). Since 2016, we have trained more than 3,000 sonographers.
Through spreading awareness of the key signs and symptoms of CHD, we teach new parents and those working with babies to Think HEART, so they can recognise the five key signs a baby may have an undiagnosed heart defect. Our Think HEART videos, leaflets and social media posts have been viewed by hundreds of thousands of people.
Another core part of our work is supporting the families of heart babies as they face the toughest of journeys. From diagnosis, to birth, surgery, recovery and beyond, we are there for heart families. We provide them with detailed information they can trust, share stories of those who have been there before them and connect them with others through our support group forum and online peer support groups. Our message to these families is always, 'You are not alone. There is a community here to support you.' Many parents describe our support services as a lifeline during their darkest hours.