use MY data Information

The only independent UK movement of patients, relatives and carers focussed on the use of patient data to save lives and improve outcomes. We strive to ensure patient data is used to create and support an NHS that serves us all and work to remove all barriers preventing this. We act as a critical friend to organisations that hold our data and campaign on a range of issues around data storage and use, advocating robust and transparent safeguarding and clear, open and honest communications with patients and the public. For a small organisation, we punch well above our weight. You’ll find our members on several influential national groups making sure the patient voice is heard and included in all conversations about patient data. Our patient data citation highlighting the patient contribution to research, has been widely adopted across the UK. Our transparency principles have been embedded in a range of organisations including Understanding Patient Data and Health Data Research UK. #patientdata #publichealth #patientvoice #usemydata #engagement #research #transparency