TOFS Information

Tracheo-Oesophageal Fistula Support ('TOFS') charity was set up in 1982 by parents of children born with OA/TOF and associated conditions. As a charity we are dedicated to: • Offering free support to anyone who was born with OA/TOF and the people who care for them. • Raising awareness of the condition amongst health care professionals. • Funding, endorsing and encouraging research into the condition and its effects What is OA/TOF OA/TOF is a rare congenital condition of the oesophagus (food pipe) and/or trachea (airway) that affects one in every 3,500 babies. Babies born with a Oesophageal Atresia (OA) and / or a Tracheo-Oesophageal Fistula (TOF) condition need to have intensive neo-natal care prior to corrective surgery, normally within days of birth. Whilst many children born with OA/TOF will experience only a few problems, others may have difficulties with swallowing and digesting food, Gastro-Oesophageal Reflux (where the acidic stomach contents pass back into the lower oesophagus) and respiratory problems. The effects of surgery and associated health problems may add a great deal to the usual challenges of parenthood. We are UK-based, have an office in Nottingham with a small team of staff, and receive no public-sector support at all. Registered charity number 327735. Disclaimer: TOFS is not engaged in the practice of medicine, and any information provided is not intended or offered as medical advice and is absolutely not a substitute for the patient’s individual consultation with qualified healthcare professionals. Read more at: https://tofs.org.uk/terms-conditions/