The Zebra Network Information

Struggling with the daily battle against EDS, the frustrations of dealing with doctors unknowledgeable about EDS - lending them unreliable and unhelpful, Victoria has refused to let EDS control her life. She played collegiate soccer and lacrosse at Eastern University while studying pre-medicine until a collection of neurological symptoms and memory loss began to take over. After 10 brain and spinal neurosurgeries, she went on be crowned as Miss White Oak 2016 and Miss Frostburg 2017, where she presents the educational platform: "But You Don't Look Sick" - Making Invisible Illnesses Visible. Victoria has been internationally recognized her her advocacy efforts, sharing her story in over 30 countries and translated into 8 languages. She has lobbied on Capitol Hill, appeared on television, in news papers and on news stations including BBC, ABC World News Tonight with David Muir, and Washington Post, to advocate for rare, chronic and invisible illnesses. She strives to be a living example to live beyond a diagnosis, unlimited by an illness. At the age of 22, she created The Zebra Network. The Zebra Network has a fiscal sponsorship with the Players' Philanthropy Fund. Through this charitable platform, we are able to provide the awareness, advocacy, education for Ehlers-Danlos Syndrome and the support to patients, as a 501(c)(3) status organization, that is so desperately deserved. Victoria Graham.JPG