The E.WE Foundation Information

The E.WE Foundation is an Alabama-based nonprofit dedicated to providing resources, support, and community for families affected by Trisomy 18 (Edwards Syndrome) and other rare and complex conditions. Through three core programs, LEAP, ZEBRA, and STRIPE, the E.WE Foundation is committed to patient education and access to care, mental health, and financial stabilization. The E.WE Foundation works collaboratively with nonprofit organizations, school systems, and state agencies to advance rare disease awareness, education, and legislation. The E.WE Foundation is also committed to empowering diverse voices within rare disease communities to advance health system advocacy, research, and public policy initiatives. The E.WE Foundation was founded by Kareem & Sarita Edwards, parents to Elijah who was diagnosed in utero with Full Trisomy 18 (Edwards Syndrome).