La Sociedad Hispana de Enfermedades Raras (SHER) nace en diciembre de 2021 con el objetivo de promover y dar visibilidad, apoyo y entrenamiento a las familias hispanas que conviven con diferentes patologías en Estados Unidos. Somos una Asociación que promueve la conciencia pública sobre enfermedades raras y brinda información y recursos en español a las familias hispanas , organizaciones, científicos y profesionales de la salud enfocados en patologías poco frecuentes.
| Website | https://www.hispanicsocietyrarediseases.org |
| Employees | 6 (0 on RocketReach) |
| Industry | Health and Human Services |
| Keywords | Rare Diseases, Hispanic Health, Family Support, Patient Advocacy, Health Advocacy, Community Support, Rare Disease Support, Minority Health, Disability Support, Health Disparities, Cultural Competency, Patient Empowerment, Medical Advocacy, Healthcare Access, Health Equity, Disease Awareness, Community Health, Support Groups, Nonprofit Organization, Patient Resources |
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