Save Our Sons Duchenne Foundation was founded in 2008 and is now the peak body for those living with Duchenne and Becker muscular dystrophy across Australia. Our vision is to find a cure for Duchenne & Becker muscular dystrophy. Duchenne is an X-linked genetic condition that affects 1 in 3500 boys and in very rare cases 1 in 50 million girls. It is the most common and most severe form of muscular dystrophy and is also known as dystrophinopathy, which refers to a mutation in the dystrophin gene, with a similar milder form of the condition called Becker muscular dystrophy. Funds raised go directly towards funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. Save Our Sons aims to make a difference in the lives of all living with Duchenne and Becker muscular dystrophy across Australia. Our Purpose includes enhancing the quality of life for persons with Duchenne and Becker muscular dystrophy with the ultimate objective of finding a cure for the condition.
View Top Employees from Save Our Sons Duchenne FoundationWebsite | http://www.saveoursons.org.au |
Employees | 8 (8 on RocketReach) |
Founded | 2008 |
Address | 3/570 New Canterbury Rd, Hurlstone Park, New South Wales 2193, AU |
Phone | +61 2 9554 6111 |
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Industry | Non-profit Organizations, Charitable Organizations & Foundations, Organizations |
Web Rank | 22 Million |
Keywords | Save Our Sons |
Competitors | Fight Mnd, Lions Medical Research Foundation, Sanfilippo Children's Foundation |
SIC | SIC Code 86 Companies, SIC Code 869 Companies |
NAICS | NAICS Code 81 Companies, NAICS Code 813 Companies |
Looking for a particular Save Our Sons Duchenne Foundation employee's phone or email?
Sandy Kervin is the CEO of Save Our Sons Duchenne Foundation.
8 people are employed at Save Our Sons Duchenne Foundation.
Save Our Sons Duchenne Foundation is based in Hurlstone Park, New South Wales.
The NAICS codes for Save Our Sons Duchenne Foundation are [81, 813].
The SIC codes for Save Our Sons Duchenne Foundation are [86, 869].