PSPA Information

PSPA is a national charity offering support and information to people living with the neurological diseases Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), while funding research into the conditions. PSPA relies entirely on voluntary donations. Both of these conditions are caused by the progressive death of nerve cells in the brain, leading to difficulty with balance, movement, cognition, vision, speech and swallowing. At least 5,000 people are living with PSP & CBD in the UK at any one time, but this number could be more than 10,000 as many are misdiagnosed with other conditions. There is no cure and there are no effective treatments for these conditions, but therapies can help manage symptoms. Thanks to PSPA, no one need face a diagnosis of PSP or CBD alone. Our helpline can be contacted on 0300 0110 122, helpline@pspassociation.org.uk