PoTS UK Information

Postural tachycardia syndrome (PoTS) is an abnormality of the functioning of the autonomic (involuntary) nervous system. PoTS UK supports and educates patients, family, friends and healthcare professionals within the United Kingdom about this under recognised and commonly misdiagnosed condition by sharing up to date evidence and resources. - We work with healthcare professionals and other charities in the UK and abroad, and advocate for our members by seeking better NHS services, more research, and targeted treatments for people with PoTS. - We aim to connect patients in a safe environment to empower them to self-manage their condition and reduce isolation. - We produce evidence-based educational content for healthcare professionals which will improve awareness of PoTS, diagnosis and management, and improve health services for patients. PoTS UK began as a Facebook group in 2010, and until 2015 all the work was undertaken by three volunteer trustees. Since then, we have grown into an internationally recognised charity. Our charity supports all ages, genders and ethnicities. Find out more at https://www.potsuk.org/ * All medical information is approved by two of our medical advisors. * As of the 2 October 2011, PoTS UK became a small charity and registered with HMRC for gift aid purposes. * PoTS UK has been affiliated with STARS (Syncope Trust and Reflex Anoxia Seizures) since April 2012. * February 2013 PoTS UK became a member of the Information Standard. * As of April 2013 PoTS UK was accepted as a member of The Specialised Healthcare Alliance (SHCA) which is an independent organisation made up of patient groups who campaign on behalf of patients with rare or complex medical problems. * PoTS UK was registered with the Charity Commission of England and Wales on the 6 January 2015.