PFIC Network Information

PFIC Network was founded in 2018 by 3 mothers of PFIC patients. Our mission is to improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis and related diseases. We strive to equip patients with the educational & support resources they need to navigate life with a devastating disease, create a sense of community & hope for those affected by PFIC, and to support research that will one day lead to a cure. While we are based in the United States, we serve a global population and provide resources for patients and families all over the world.