Osteogenesis Imperfecta Federation Europe Information

The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association. Its membership consists of national and sub-national organisations which, in one way or another, support people living with the rare diagnosis Osteogenesis Imperfecta (OI). The OIFE was established in 1993 by six founding OI societies as a non-profit organisation and is registered as a charity in the Netherlands. Our goals are to: * Represent our members on an international level and be the voice of people with OI and their families * Grow an international network between professionals, organizations, individuals and other stakeholders * Advocate for access to competent healthcare and social support * Encourage scientific research on OI * Empower our members by sharing information, knowledge and best practices * Support development of OI organizations and local support in more countries * Guide individuals towards information, healthcare and support