Marco Roos Email

Marco Roos Work

• 2024 - now Work package co-leader European Rare Disease Research Association (ERDERA) @ ERDERA
• 2024 - now Work package co-leader HemaFAIR @ HemaFAIR
• 2024 - now FAIR advisor of the Metachromatic leukodystrophy initiative (MLDi) registry @ Zorginstituut Nederland
• 2024 - now Work package co-leader Joint Action Rare Disease Integration of National health systems and ERNs @ JARDIN Joint Action
• 2024 - now Work Package co-leader Patient Lifestyle and Disease Data Interactium (PaLaDIn) @ PaLaDIn
• 2024 - now Member of Scientific Advisory Board Leiden Institute on FAIR and Equitable Science (LIFES) @ Leiden Institute on FAIR and Equitable Science (LIFES)
• 2020 - now Group leader and associate professor LUMC Biosemantics group @ Leiden University Medical Center
• now Group leader and assistant professor LUMC Biosemantics group @ Leiden University Medical Center
• now Group leader and Senior research scientist LUMC BioSemantics group @ Leiden University Medical Center
• 2019 - now Project Coordinator @ NWO Data2Person
• 2019 - now Co-lead ELIXIR rare disease user community @ ELIXIR
• 2015 - 2019 Co-lead work package rare disease use case @ ELIXIR
• 2018 - now Coordinator Rare Disease Global Open FAIR implementation network (RDs GO FAIR) @ GO FAIR initiative
• now Editorial board member Translational Science of Rare Diseases (IOS Press) @ IOS Press
• 2019 - 2025 Work package leader European Joint Programme Rare Diseases @ European Joint Programme Rare Diseases (EJPRD)
• 2013 - 2019 Chair rare disease linked data and ontology task force @ multiple projects
• now Active member Netherlands BioInformatics Centre (NBIC) @ NBIC
• now Bioinformatician (PhD) @ Adaptive Information Disclosure (AID), Institute of Informatics, University of A
• 2003 - 2006 Bioinformatician (post-doc and sub-project leader) @ University of Amsterdam, Integrative Bioinformatics Unit
• 2001 - 2003 Bioinformatician (post-doc) @ Human Genetics Department, Academic Medical Hospital, University of Amsterdam
• 1996 - 2001 PhD student Molecular Cytology @ Molecular Cytology Department, University of Amsterdam
• 1995 - 1996 Replacement military service @ Radiobiology, Academic Medical Hospital, Unitversity of Amsterdam