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Marco Roos Location
Leiden, ZH, NL
Marco Roos Work
Co-lead Health RI deliverable on data interoperability @ (May 2026 - Present)
Co-lead Health RI Rare Disease Node and Rare Disease National Mirror Group Data working group @ (March 2026 - Present)
Work package co-leader European Rare Disease Research Association (ERDERA) @ (September 2024 - Present)
Work package co-leader HemaFAIR @ (July 2024 - Present)
FAIR advisor of the Metachromatic leukodystrophy initiative (MLDi) registry @ (April 2024 - Present)
Work package co-leader Joint Action Rare Disease Integration of National health systems and ERNs @ (February 2024 - Present)
Work Package co-leader Patient Lifestyle and Disease Data Interactium (PaLaDIn) @ (January 2024 - Present)
Member of Scientific Advisory Board Leiden Institute on FAIR and Equitable Science (LIFES) @ Leiden Institute on FAIR and Equitable Science (LIFES) (January 2024 - Present)
Group leader and associate professor LUMC Biosemantics group @ (October 2020 - Present)
Group leader and assistant professor LUMC Biosemantics group @ (January 2016 - October 2020)
Group leader and Senior research scientist LUMC BioSemantics group @ (January 2009 - January 2016)
Co-lead ELIXIR rare disease user community @ (October 2019 - Present)
Co-lead work package rare disease use case @ (September 2015 - October 2019)
Coordinator Rare Disease Global Open FAIR implementation network (RDs GO FAIR) @ (December 2018 - Present)
Editorial board member Translational Science of Rare Diseases (IOS Press) @ (January 2016 - Present)
Work package leader European Joint Programme Rare Diseases @ European Joint Programme Rare Diseases (EJPRD) (January 2019 - May 2025)
Chair rare disease linked data and ontology task force @ multiple projects (November 2013 - March 2019)
Active member Netherlands BioInformatics Centre (NBIC) @ (January 2007 - January 2014)
Bioinformatician (PhD) @ (January 2006 - January 2009)
Bioinformatician (post-doc and sub-project leader) @ University of Amsterdam, Integrative Bioinformatics Unit (August 2003 - December 2006)
Bioinformatician (post-doc) @ Human Genetics Department, Academic Medical Hospital, University of Amsterdam (December 2001 - July 2003)
PhD student Molecular Cytology @ Molecular Cytology Department, University of Amsterdam (September 1996 - July 2001)
Replacement military service @ Radiobiology, Academic Medical Hospital, Unitversity of Amsterdam (October 1995 - October 1996)
Marco Roos Education
University of Amsterdam
Master’s Degree (Cell/Cellular and Molecular Biology)
1988-1995
Marco Roos Skills
Computational Biology
Semantic Interoperability
Chromatin
Biology
Data Management
Genomics
Confocal Microscopy
Data Analysis
Cell
DNA
Linked Data
Epigenetics
Life Sciences
Image Processing
Fluorescence
Molecular Biology
Data Modeling
Bioinformatics
Semantic Web
Molecular And Cellular Biology
Genetics
Workflow Management
Science
Rare Diseases
Biomarker Discovery
Data Mining
Marco Roos Summary
Marco Roos, based in Leiden, ZH, NL, is currently a Co-lead Health RI deliverable on data interoperability at Health-RI. Marco Roos brings experience from previous roles at Health-RI, ERDERA, HemaFAIR and Zorginstituut Nederland. Marco Roos holds a 1988 - 1995 Master’s Degree in Cell/Cellular and Molecular Biology @ University of Amsterdam. With a robust skill set that includes Computational Biology, Semantic Interoperability, Chromatin, Biology, Data Management and more. Marco Roos has 5 emails on RocketReach.
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