The mission of the Lymphatic Education & Research Network (LE&RN) is to fight lymphatic diseases through education, research, and advocacy. For help navigating your journey living with lymphatic disease, call the LE&RN Resource Center at 1-855-378-8163 or visit https://lymphaticnetwork.org/resource-center
Lipoedema UK is a national charitable organisation raising awareness of lipoedema. Lipoedema UK advocate for better treatment and new research to be funded for this much misunderstood yet common genetic condition mainly affecting women post-puberty.
Lipoedema is frequently misdiagnosed as obesity or lymphoedema and therefore wrongly treated (or not treated) for years, which can negatively affect people's family life, work life and overall quality of life.
The main symptom are excess, often painful, fat on the legs, hips and for some people the upper arms. Feet and hands are spared. The condition is often reported to worsen with the impact of hormonal changes such as pregnancy, menopause, etc.
Please view our website for the latest up to date information.
Lymph Notes provides online information resources and community for people with lymphedema, lipedema, and related conditions as well has caregivers and health care professionals. We also publish books for this market.
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