Indo US Organization for Rare Diseases (IndoUSrare) Information

Indo US Organization for rare diseases (IndoUSrare) is an independent non-profit organization focused on helping patients with rare diseases of Indian origin in the USA, India, and globally with a vision to build collaborative highway-bridges between the west and the east to accelerate research and development of diagnostics and therapies through education, advocacy, research, and grants. IndoUSrare serves as a gateway to the highway-bridges between the USA, and the Indian subcontinent to accelerate research & development of Diagnostics, Drugs, Devices, Biologics, and Therapeutics for rare diseases. The USA is the largest funder of biomedical research with a forward-looking regulatory framework for innovative new medicines including cell and gene therapies. India is the largest democracy with a genetically diverse population of over 1.3 Billion people. Yet, India accounts for less than 1% of the global clinical research footprint. IndoUSrare will address this gap through enabling education, awareness, advocacy, fostering research collaborations and patient engagement in global clinical trials. Our Board of Directors: Harsha K Rajasimha, Ph.D. Founder and Chairman Sundeep Agrawal, MD, Colt Ventures Charles Andres, Ph.D., JD, Wilson Sonsini Goodrich Rosati Law Firm Narayanan Govindarajan, MS, UWorld Reena Kartha, Ph.D., Center for Orphan Drugs, University of Minnesota Frank Sasinowski, MS, MPH, JD, Regulatory Attorney, Hyman Phelps McNamara PC and Vice-chair of EveryLife Foundation for rare diseases. Advisors: ------------------------------- Stephen Groft, Pharm.D., Board Director of ICORD, Retired Director, NIH, Bethesda, MD Nicole Boice, Global Genes and RARE-X, Orange County, CA Ancha Baranova, Professor, George Mason University, Fairfax, VA Team Members: Srinivas Seshadri, Director of Roarforrare, SFBayarea