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IBD Partners is the leading decentralized clinical research platform in IBD, which has powered 100+ peer-reviewed, published research studies. IBDPartners connects researchers to more than 15,000 adult IBD patients from across the country. The registries are comprised of patient-reported data captured via a series of online surveys on topics including diet, treatments, and other issues concerning patients’ disease management and quality of life. In addition, this study also allows patients to connect their mobile health applications and wearable devices such as Fitbit. IBD Partners also puts an emphasis on the patient voice, allowing them the ability to generate and vote on research topics to aid researchers in generation of research questions, which they can then leverage the database to answer.

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Website http://ibdpartners.org
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Founded 2015
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