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This organization was founded around a genetic disorder in albinos named Hermasky-Pudlak Syndrome. Our goal is to find a cure! Through relationships with interested doctors and the National Institutes of Health, we have begun new research protocols and drug trials are underway for Pulmonary Fibrosis and other related ailments.

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Hermansky-Pudlak Syndrome Network Questions

The Hermansky-Pudlak Syndrome Network annual revenue was $355000 in 2024.

Donna Appell is the Founder and President of Hermansky-Pudlak Syndrome Network.

5 people are employed at Hermansky-Pudlak Syndrome Network.

Hermansky-Pudlak Syndrome Network is based in Oyster Bay Cove, New York.

The NAICS codes for Hermansky-Pudlak Syndrome Network are [81321, 81, 8132, 813212, 813].

The SIC codes for Hermansky-Pudlak Syndrome Network are [839, 83].

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