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Firefly Fund provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children and currently have no cure. The inspiration behind the Firefly Fund came after parents Pam and Chris Andrews discovered that both of their daughters, Belle age 6 and Abby age 2, had Niemann-Pick Type C1 (NPC1) in early 2016. NPC1 is a progressive neurodegenerative disease that attacks every cell of the human body and has a lifespan of 12-20 years.

Firefly Fund Questions

The Firefly Fund annual revenue was $3 million in 2026.

Pam Andrews is the Co-Founder and Executive Director of Firefly Fund.

1 people are employed at Firefly Fund.

Firefly Fund is based in Austin, Texas.

The NAICS codes for Firefly Fund are [81321, 81, 813212, 813, 8132].

The SIC codes for Firefly Fund are [839, 83].

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