DysNet Information

DysNet is the global network connecting anyone who is personally or professionally affected by congenital limb deficiency. The site is inclusive, communicative and collaborative. This is the place where you can find information, contribute your own thoughts and ideas and join the conversation. Dysmelia is the generic term for all types of congenital limb differences - genetic, environmentally-induced or caused by an isolated fetal development problem. It is a rare condition with varying degrees and types of congenital limb damage and affects about 5 people in every 10 000. We are developing a network of experts - the Dysmelia Expert Forum - who can help answer any questions you might have about dysmelia or living with limb loss. When you join our community, you will get the opportunity to have your medical or practical questions answered by experts in the field. Help us to develop a strong global voice for dysmelia. As an individual you can register on the DysNet website - the place to access information - and the multi-lingual DysNet RareConnect community - a safe, moderated space to connect with your peers. As an organisation, you can join DysNet.