The Duchenne Data Foundation (DDF) works in close collaboration with the World Duchenne Organization (WDO) to achieve the best possible outcomes for the global dystrophinopathy community. This includes people living with Duchenne and Becker Muscular Dystrophy, as well as people carrying the Duchenne and/or Becker gene mutation. DDF brings together all sources of data related to dystrophinopathies, to make an impact for the global community. We do this by building innovative approaches to connecting data, and to promote knowledge sharing that will form our strategy into the future. Our strategic direction is built around four key pillars: Research and development; Education and training; Standards of care and quality of life; Data Governance and Access.
| Website | https://www.duchennedatafoundation.org/ |
| Employees | 5 (3 on RocketReach) |
| Founded | 2015 |
| Technologies |
JavaScript
,
HTML
,
PHP
+14 more
(view full list)
|
| Industry | Non-profit Organization Management |
| Keywords | Duchenne Muscular Dystrophy, Rare Disease Research, Genetic Disorders Research, Muscle Disease Research, Patient Advocacy, Global Health Initiatives, Clinical Trials, Data Sharing, Biomedical Data, Disease Registry, Genetic Research, Rare Disease Advocacy, Pharmaceutical Research, Healthcare Data, Medical Research, Biotechnology, Nonprofit Organization, Global Collaboration |
| Competitors | CureDuchenne, Duchenne UK, Solid Biosciences, Avidity Biosciences, Inc., Sarepta Therapeutics, Inc., Wave Life Sciences, Exonics Therapeutics, Myotonic Dystrophy Foundation, PTC Therapeutics, Inc., Catabasis Pharmaceuticals, Inc. +24 more (view full list) |
Looking for a particular Duchenne Data Foundation employee's phone or email?
Duchenne Data Foundation Questions
Sergiu Siminiuc is the CTO of Duchenne Data Foundation.
3 people are employed at Duchenne Data Foundation.
Duchenne Data Foundation is based in Soest, Utrecht.
Top Duchenne Data Foundation Employees
Related Companies
