Home of the International SCN8A Alliance, DEE-P Connections and The Inchstone Project. Our core mission is to improve the lives of DEE families by implementing cutting-edge programs and research. We collaborate with all stakeholders—families, advocacy partners, scientists, health care providers and industry partners—across the globe to more rapidly find answers.
| Website | https://www.ddecoding.org/ |
| Employees | 8 (4 on RocketReach) |
| Founded | 2014 |
| Industry | Non-profit Organization Management |
| Keywords | Epilepsy Research, Childhood Epilepsy, Rare Disease Research, Pediatric Neurology, Epilepsy Advocacy, Epilepsy Treatment, Epilepsy Support, Patient Advocacy, Neurological Disorders, Epilepsy Awareness, Epilepsy Foundation, Medical Research, Genetic Testing, Family Support, Clinical Trials, Drug Development |
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Gabrielle Conecker is the Executive Director and Co-Founder of Decoding Developmental Epilepsies.
4 people are employed at Decoding Developmental Epilepsies.
Decoding Developmental Epilepsies is based in Washington, District of Columbia.
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Jayetta Hecker
Board Chair at Decoding Developmental Epilepsies
Washington, DC, US
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