DecodeME Information

Partnering with the MRC Human Genetics Unit at the University of Edinburgh and the London School of Hygiene and Tropical Medicine, Decode ME is led by the ME/CFS Biomedical Partnership. This collaboration of researchers, people with ME/CFS, carers and advocates has grown out of the UK CFS/ME Research Collaborative (CMRC), established in 2013 by Prof Stephen Holgate, MRC Clinical Professor of Immunopharmacology at the University of Southampton. We have secured funding for a very large study to analyse DNA from the saliva of people with ME/CFS to see whether the disease is partly genetic and if so, help pinpoint what causes it. The study should help us understand the disease and ultimately find treatments. We need 20,000 participants – and people to help us find them. If you’re interested, please let us know now, so that when the study launches in early 2021, we can start reaching out to potential participants and collecting samples immediately.