CureNFwithJack Information

CureNFwithJack (CNFWJ) is a non-profit, 501(c)(3) corporation whose mission is to advance awareness and find a cure or effective treatment for neurofibromatosis (NF) through the funding of NF research. NF is a genetic disorder and cancer pre-disposition syndrome that causes tumors to grow anywhere on the nerve sheaths of the body, including the brain and spinal cord. About 1 in 2000 individuals are born with NF, and approximately half of these instances are a result of spontaneous mutation, which means anyone's child can be born with NF. We believe in a future where no one lives in fear of NF. We're investing in cutting-edge medical advancements, leading the charge toward a cure. We're not just fighting a disease; we're changing lives, one breakthrough at a time. We understand and act with the knowledge that time is of the essence for all of those affected by NF and seek to find a cure within Jack’s lifetime. Accordingly, the foundation of all of CNFWJ’s goals is based on avoiding time-consuming duplication of efforts and accelerating research to the best of our ability. With a focus on our guiding values of perseverance, collaboration, and integrity, we are positioned to make a difference. Join us in rewriting the future for NF patients worldwide and envisioning a world without NF.