Cornelia de Lange Syndrome Foundation Information

The CdLS Foundation provides a host of services that educate and unite families touched by this little-known genetic syndrome. Each day, we enlist the support of hundreds of dedicated volunteers throughout the United States, as well as the expertise of professionals from the fields of genetics, medicine, education, psychiatry, and more, in our effort toward advancing both societal and scientific understanding of CdLS. Our Mission: The Cornelia de Lange Syndrome Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime. Follow The CdLS Foundation on Twitter and Facebook! Tweet @CdLSFoundation and "friend" Cornelia de Lange for up to date information!