The Ciliopathy Alliance brings together patient support groups, researchers, doctors and allied health professionals representing patients and families living with and affected by ciliopathies - diseases caused by defects in the function or structure of cilia. Dysfunctional cilia are known to underlie a number of often chronically disabling and sometimes life-threatening genetic conditions. They affect multiple systems, causing blindness, deafness, chronic respiratory infections, kidney disease, heart disease, infertility, obesity and diabetes. Over 20 ciliopathies have been identified and more are suspected, with an estimated 1 in 1,000 people affected. Our shared vision is to improve the quality of life for people living with ciliopathy syndromes and conditions. Please join us in this endeavour.
View Top Employees from CILIOPATHY ALLIANCE| Website | https://www.ciliopathyalliance.org/ |
| Employees | 1 (0 on RocketReach) |
| Founded | 2011 |
| Phone | +44 20 7387 0543 |
| Technologies |
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| Industry | Hospitals and Health Care, Charitable Organizations & Foundations, Organizations |
| Competitors | Fanconi Hope, Northern Ireland Rare Disease Partnership (NIRDP), PKD International, Polycystic Kidney Disease (PKD) Charity UK |
| SIC | SIC Code 83 Companies, SIC Code 839 Companies |
| NAICS | NAICS Code 813 Companies, NAICS Code 81 Companies, NAICS Code 8132 Companies, NAICS Code 81321 Companies, NAICS Code 813212 Companies |
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CILIOPATHY ALLIANCE Questions
The NAICS codes for CILIOPATHY ALLIANCE are [813, 81, 8132, 81321, 813212].
The SIC codes for CILIOPATHY ALLIANCE are [83, 839].
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