Children's Brittle Bone Foundation Information

Our Mission: The mission of the Children's Brittle Bone Foundation is to provide funds for research into the causes, diagnosis, treatment, prevention, and eventual cure for Osteogenesis Imperfecta (OI), while supporting programs that improve the quality of life for people afflicted with OI, promote awareness, and educate the public. Our History: The Children’s Brittle Bone Foundation was founded in 1990 in response to the lack of information available for families affected by OI. A group of friends in Chicago came together to raise money with the goal to find answers about this mysterious and heart breaking disease. Through annual golf outings and other fundraisers, the CBBF has raised over $6 Million. Additionally, we testified in front of the House Ways and Means Committee and were instrumental in getting the National Institute of Health to provide a five-year research stipend of $12.5 Million. We are an entirely volunteer-based organization, allowing us to direct 100% of our proceeds to the OI community.