Charley's Fund Information

Charley’s Fund is a nonprofit organization dedicated to accelerating research to treat and cure Duchenne muscular dystrophy. DMD is a rare, fatal genetic disease that affects 1 in every 3,500 boys. Since our founding in 2004 by Charley’s parents, we have directed more than $40 million to research, sparked a national advocacy movement more than 100,000 people strong, and fundamentally altered the trajectory of progress toward a cure. We are a small but mighty force to be reckoned with, and we let nothing stand in our way of saving Charley and thousands of boys like him with DMD.