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Congenital Central Hypoventilation Syndrome (CCHS) is an extremely rare disorder that affects the body’s ability to control basic functions, such as breathing during sleep. There are no available treatments to date beyond mechanical ventilation. The CCHS Network is casting a light on this orphan disease to ensure a brighter future for our small but determined community. Our Mission Building Community, Empowering Patients, Championing Research The CCHS Network has a multi-focused mission of education and support of our families and CCHS patients, inter-family and family-physician communication, and supporting and facilitating CCHS research.

CCHS Network Questions

CCHS Network is based in Oneonta, New York.

The NAICS codes for CCHS Network are [81, 813212, 81321, 813, 8132].

The SIC codes for CCHS Network are [839, 83].

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