Brame Information

Firstly welcome to this brief edition of ME TODAY and our sincere thanks to all of you, in the UK and around the world, who have continued to support BRAME. As most of you know the BRAME campaign was initiated by myself in April 1995 and is run by just myself and my mum/carer Christine. Unfortunately I have been too ill to do a newsletter since November 1999, but we want you to know that we are using what time and energy we have by continuing our work at a more governmental level in highlighting the plight of those living with ME, and creating a greater awareness and understanding of the illness ME and the consequences of living with such a complex and debilitating illness. As I have been unable to do a newsletter recently people may think that we have not been very proactive of late but I hope that this brief news-sheet will give you a synopsis of what we have been doing. BRAME receives no formal funding, the vast majority of our donations are personal and we are very grateful for these, both large and small. We have not received as many donations recently but we still hope when we do our end of year accounts to send between £2000 and £3000 to research into this debilitating illness in the new year. One group which has adopted the BRAME objectives has been CAME, which was formed and run by Trevor Wainwright, who uses BRAME products and literature in his fund-raising efforts. Since he started in November 1997 he has raised £3196 for BRAME and £9880 for the CFS Research Foundation over the past four years. Our thanks to you all for your generous support. We would also like to thank ME groups for continuing to send your newsletters, and to everyone for your tolerance with delays in correspondence etc over the past three years. We experienced enormous problems with redirected mail, plus there were more demands on us as we tried to balance my personal goal of going to university with running the campaign. I now have been ordered to rest as I have many health issues to be addressed and must begin treatment for my ...