AT Society Information

Ataxia Telangiectasia (AT) is a progressive genetic condition which causes severe disability and shortens lives. The AT Society exists to ensure that every life with AT is lived to the full and to fund and promote research to develop treatments for the condition and ultimately find a cure. Since 1989, the AT Society has been leading the way in supporting people living with AT and promoting research. We are in touch with almost every person known to have a diagnosis of AT in the UK and Ireland. In 1994 we established the first ever specialist AT clinic in Nottingham and still work closely with the two specialist centres in the UK. We recently published the first -ever clinical guidance document, now available in English and French. In 2011, the AT Society established the international AT Clinical Research Network and a year later inaugurated (and continues to administer) a series of international clinical research conferences. Over the last 30 years we have funded a wide range of research projects and posts. We are currently leading work to establish an international AT patient registry and are supporting the organisation of the first ever multi-centre clinical trial of a treatment for AT, led by the Italian firm Erydel.